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Teenager with 'Benjamin Button disease' dies weeks after her 18th birthday

According to the Daily Mail, a teenager with 'Benjamin Button' disease that left her with the body of a 144-year-old has died weeks after her 18th birthday. Benjamin Button disease
The media outlet said Ashanti Smith, from West Sussex, passed away on Saturday, July 17, after living with the ultra rare premature aging condition Hutchinson-Gilford Progeria Syndrome, which saw her age eight years for every year of her life.
It added, despite her body being the equivalent of a 144-year-old when she passed away, Ashanti was still able to enjoy turning 18 in May with a night out, drinking her favourite cocktail.
The teen died with her mother, father Shaine Wickens, 33, and a family friend, Kayleigh Cartwright, 25, by her side - with some of her final words to her mum being 'you've got to let me go'.
Her mother,Phoebe Louise Smith, insists that despite her serious condition, she was determined to be treated like any other teenager.
She said: 'She was louder - louder than me - and I'm a very loud person.
The mother added that 'her condition affected her mobility to walk as far. She had a broken hip and it had to be set back in three times, then eventually it came out again and she just walked with a broken hip.
She continued: 'She struggled but she said "Mum, I love you. You've got to let me go".'
On Monday, the family paid tribute to Ashanti, with Phoebe explaining: 'We set off 150 helium balloons for her and a £400 display of fireworks, then we're doing 300 lanterns."
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BENEFIT Sponsors BuildHer...
- April 23, 2025
BENEFIT, the Kingdom’s innovator and leading company in Fintech and electronic financial transactions service, has sponsored the BuildHer CityHack 2025 Hackathon, a two-day event spearheaded by the College of Engineering and Technology at the Royal University for Women (RUW).
Aimed at secondary school students, the event brought together a distinguished group of academic professionals and technology experts to mentor and inspire young participants.
More than 100 high school students from across the Kingdom of Bahrain took part in the hackathon, which featured an intensive programme of training workshops and hands-on sessions. These activities were tailored to enhance participants’ critical thinking, collaborative problem-solving, and team-building capabilities, while also encouraging the development of practical and sustainable solutions to contemporary challenges using modern technological tools.
BENEFIT’s Chief Executive Mr. Abdulwahed AlJanahi, commented: “Our support for this educational hackathon reflects our long-term strategic vision to nurture the talents of emerging national youth and empower the next generation of accomplished female leaders in technology. By fostering creativity and innovation, we aim to contribute meaningfully to Bahrain’s comprehensive development goals and align with the aspirations outlined in the Kingdom’s Vision 2030—an ambition in which BENEFIT plays a central role.”
Professor Riyadh Yousif Hamzah, President of the Royal University for Women, commented: “This initiative reflects our commitment to advancing women in STEM fields. We're cultivating a generation of creative, solution-driven female leaders who will drive national development. Our partnership with BENEFIT exemplifies the powerful synergy between academia and private sector in supporting educational innovation.”
Hanan Abdulla Hasan, Senior Manager, PR & Communication at BENEFIT, said: “We are honoured to collaborate with RUW in supporting this remarkable technology-focused event. It highlights our commitment to social responsibility, and our ongoing efforts to enhance the digital and innovation capabilities of young Bahraini women and foster their ability to harness technological tools in the service of a smarter, more sustainable future.”
For his part, Dr. Humam ElAgha, Acting Dean of the College of Engineering and Technology at the University, said: “BuildHer CityHack 2025 embodies our hands-on approach to education. By tackling real-world problems through creative thinking and sustainable solutions, we're preparing women to thrive in the knowledge economy – a cornerstone of the University's vision.”
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